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Abstract Details

Rock Steady Boxing (RSB) participants with Parkinson’s disease have better quality of life and lower burden of non-motor symptoms than non-participants
Movement Disorders
S41 - Parkinson's Disease Interventions and Clinical Trials (2:00 PM-2:12 PM)
006
To compare demographics, self-reported symptom burden, Quality of Life (QoL), and Exercise Self-Efficacy (ESE) between RSB participants and non-participants.

RSB is a non-contact boxing program for individuals with PD. The 90-minute group classes focus on agility, balance, and speed training. There are 43,500 participants at 871 RSB sites.

A 20 minute, 61-question anonymous survey on SurveyMonkey®, which included the Parkinson’s Disease Questionnaire-39 (PDQ-39) and the Self Efficacy for Exercise (SEE) Scale, was completed by adults with PD who have heard of RSB. The survey was distributed via e-mail and social media by RSB Inc. and the Parkinson Foundation from 7/2018 to 2/2019. Difference in demographics and assessment outcomes between participants and non-participants were analyzed using chi-squared test or fisher’s exact test for categorical variables and Wilcoxon test for continuous variables.

Of 2,054 individuals enrolled in the survey, 1,709 were eligible for analysis. 1,333 were current participators, 166 previously participated, and 210 never participated in RSB. RSB participants were 64-74 years old, 59% male, and 96% Caucasian. Compared to non-participants, a higher percentage of participants were retired (76 vs 65%, p <0.01) and married/partnered (85 vs 80%, p=0.03). There was no difference in years since PD diagnosis or Movement Disorders specialist use (66 vs 62% respectively). The majority of participants reported improvement in: social life (70%), fatigue (62%), fear of falling (61%), depression (60%), and anxiety (58%). Compared to non-participants, current participants had better PDQ-39 scores (25 vs 32, p <0.01) and better SEE scores (54 vs 48, p <0.01), indicating better QoL and ESE. 99% of current and 94% of previous participants recommend RSB to others with PD.

This is the largest analysis of RSB use in PD, and demonstrates that RSB participants have improvement in non-motor symptoms of PD, and compared to non-participants have significantly better QoL and ESE.  

Authors/Disclosures
Danielle Larson, MD (Northwestern University, Feinberg School of Medicine)
PRESENTER
Dr. Larson has received personal compensation in the range of $0-$499 for serving as a Consultant for Acadia Pharmaceuticals.
No disclosure on file
Miriam R. Rafferty, PhD, PT (Shirley Ryan AbilityLab, Northwestern University) No disclosure on file
Danny Bega, MD (Northwestern University) Dr. Bega has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Teva Pharmaceuticals. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving as a Consultant for GE Healthcare. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Acadia Pharmaceuticals. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Alexion Pharmaceuticals. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving as a Consultant for WebMD. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Teva Pharmaceuticals. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Acorda Therapeutics. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Neurocrine Biosciences. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Kyowa Kirin. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Supernus Pharmaceuticals. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Abbvie. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Sunovion. Dr. Bega has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for ACTN / ANA. The institution of Dr. Bega has received research support from Huntington Disease Society of America. The institution of Dr. Bega has received research support from Parkinson Foundation.