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Press Release

EMBARGOED FOR RELEASE UNTIL 4 PM ET, June 18, 2014

Group Doctor Visits May Improve Life for People with Muscle Disorders

MINNEAPOLIS -

A new study suggests that people with muscle diseases such as muscular dystrophies may benefit more from group doctor visits than individual appointments. The study is published in the June 18, 2014, online issue of , the medical journal of the . 鈥淚n this age when the demand for neurologists is rising faster than the supply and health care costs continue to rise, it鈥檚 important to look for finding solutions that are both effective and efficient,鈥 said study author Femke M. Seesing, MSc, of Radboud University Medical Center in Nijmegen, Netherlands. Group visits have shown benefits for people with other chronic conditions, but have not been studied for people with neuromuscular disorders. For the study, 272 people with chronic neuromuscular disorders were randomly assigned to a group medical appointment or an individual appointment for their annual appointment. Spouses or partners were included. For the group visits, five to eight people with the same disorder saw a neurologist for an hour and a half to two hours. Individual appointments lasted 20 to 30 minutes. Participants then were given questionnaires that measured their quality of life one week, three months and six months after the appointment. The study found that those in the group visits scored an average of three points higher on a quality of life test than those in individual doctor appointments. Seesing noted that the benefit was modest. 鈥淲hile the improvement was similar to that seen in previous studies of group visits, it did not reach the five-point difference necessary to be clinically important,鈥 she said. 鈥淭his may be due to the progressive nature of neuromuscular disorders.鈥 Seesing said the group visits combine individualized care with peer support and the chance to learn from other people鈥檚 experiences. 鈥淕roup visits may be especially beneficial for patients with neuromuscular disorders, where it can be difficult to address all of the complex problems of the disorder in a traditional appointment, and where the main treatment goals focus on optimizing quality of life and improving self-management in the absence of a cure.鈥 The study was supported by ZonMw, the Netherlands Organization for Health Research and Development. To learn more about neuromuscular disorders, please visit .

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