Abstract Details

Title Characteristics of Electronic and Paper Questionnaire Users in an Academic Memory Clinic

Topic Aging, Dementia, and Behavioral Neurology

Presentation(s) Behavioral and Cognitive Neurology Posters (7:00 AM-5:00 PM)

Poster/Presentation
Number 031

Objective To describe differences between patients and caregivers who did and did not use electronic health questionnaires in an academic memory clinic.

Background Patient-reported outcomes (PROs) are increasingly essential for ensuring detailed patient information is collected despite the time constraints of modern clinical care. Electronic PROs are especially promising given the rising prominence of telehealth. Electronic methods of data collection, however, may present unique challenges that risk excluding certain patients and caregivers.

Design/Methods This is a descriptive, retrospective study of patients and caregivers in an academic memory clinic (N = 785). Patients and caregivers were invited to fill electronic questionnaires ahead of their visit and provided paper questionnaires at the time of their visit if an electronic survey was not filled. We investigated demographic, disease-related, and caregiver-related characteristics of those who filled electronic surveys, paper surveys, or no surveys at all, using mixed-effects logistic regression models.

Results Electronic questionnaires were more likely to be filled by caregivers with advancing patient age (beta=0.04, p<0.001, CI[0.02; 0.05]). There was no effect of gender or race. Hispanic/Latino ethnicity correlated with decreased use of electronic questionnaires, likely due to lack of Spanish translation (beta=-1.3, p<0.015, CI[-2.4;-0.26]). Medicaid use was associated with less use of electronic questionnaires (beta=-1.25, p=0.001, CI[-2.0,-0.5]). Neurobehavioral symptoms correlated with increased use of electronic questionnaires by caregivers (beta=0.2, p<0.001, CI[0.1,0.2]), as did increasing patient functional disability (beta=0.1, p<0.001, CI[0.0,0.1]). Self reported caregiver burden also associated with decreased use of electronic questionnaires (beta=-2.2, p<0.001, CI[-2.8,-1.6]).

Conclusions Electronic questionnaires may offer caregivers a safe means of reporting difficult symptoms, though caregivers may be more hesitant to fill electronic forms if there are many other sources of caregiver burden. Additional considerations should be given to expand accessibility to those of lower socioeconomic status and ethnic minorities.

Authors/Disclosures
Boston E. Gubler PRESENTER	Mr. Gubler has nothing to disclose.
Gordon Matthewson	Mr. Matthewson has received research support from University of Colorado.
	No disclosure on file
	No disclosure on file
Jonathan H. Woodcock, MD (University of Colorado - Anschutz Medical Campus)	Dr. Woodcock has nothing to disclose.
Peter S. Pressman, MD (Univeristy of Colorado School of Medicine)	The institution of Dr. Pressman has received research support from the Doris Duke Fund to Retain Clinical Scientists . Dr. Pressman has received personal compensation in the range of $100,000-$499,999 for serving as a Associate Professor with University of Colorado School of Medicine.

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