好色先生

好色先生

Explore the latest content from across our publications
Join The AAN

Log In

Forgot Password?
Create New Account

Loading... please wait

Abstract Details

Development and Usability Testing of a Patient-based Digital Tool to Understand Early Signs of Changes in Multiple Sclerosis Symptoms and Progression: Your MS Questionnaire
Multiple Sclerosis
MS and CNS Inflammatory Disease Posters (7:00 AM-5:00 PM)
192
To develop a patient-based tool, Your MS Questionnaire, completed by people with multiple sclerosis (pwMS) and evaluate its usability to help both pwMS and healthcare professionals (HCP) understand changes in MS-symptoms, disease progression, and their impact on daily activities.
The validated physician-completed MSProDiscussTM tool facilitates physician-patient interaction in evaluating early signs of disease progression and the risk of transition from RRMS to SPMS. While evaluating MSProDiscuss, development of a patient-completed tool was a commonly received suggestion to monitor experiences of pwMS over time and facilitate discussions with HCPs.
Your MS Questionnaire is derived from MSProDiscuss, using input from pwMS, patient organizations and HCPs to include feedback from a broad range of RRMS/SPMS patients. By means of 15 questions, it captures the individual perception of pwMS regarding changes in MS symptoms, disability progression and impact on daily living over the past 6 months. For testing of the questionnaire, two surveys (15 questions each) are being conducted among the treating neurologists initially after every consultation to understand patient-details, patient-satisfaction, HCP-satisfaction, and usability of MSProDiscuss, and finally after 40 consultations (a minimum 10 consultations) capturing in-depth feedback on usefulness, integration in daily clinical routine in addition to MSProDiscuss, and improvement areas. PwMS had the option to complete an electronic or paper version of the questionnaire prior to the consultation.

Usability testing of Your MS Questionnaire is currently ongoing across 8 countries including the US, UK, Germany, Spain, Italy, Canada, Australia and China, permitting assessment of different aspects of the tool’s usability. Results will be presented at the meeting.
Your MS Questionnaire will facilitate the collection of real-world feedback from pwMS to help neurologists manage MS-disease activity and symptoms in daily-life. When completed before consultations, it may benefit pwMS and physicians through a better-structured conversation, including potential uses in telemedicine.
Authors/Disclosures
Enrique Alvarez, MD, PhD (University of Colorado)
PRESENTER 		Dr. Alvarez has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for TG Therapeutics. Dr. Alvarez has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Alvarez has received personal compensation in the range of $50,000-$99,999 for serving on a Scientific Advisory or Data Safety Monitoring board for EMD Serono. Dr. Alvarez has received personal compensation in the range of $50,000-$99,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Genentech. Dr. Alvarez has received personal compensation in the range of $50,000-$99,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Dr. Alvarez has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Alvarez has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sanofi. Dr. Alvarez has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Celgene/BMS. The institution of an immediate family member of Dr. Alvarez has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for UCB. The institution of Dr. Alvarez has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Horizon.
Tjalf Ziemssen, MD, FAAN (University Clinic Dresden) Dr. Ziemssen has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Roche. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving as a Consultant for BMS . Dr. Ziemssen has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Merck. Dr. Ziemssen has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Roche. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Novartis. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Merck. Dr. Ziemssen has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Sanofi. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for TEVA. Dr. Ziemssen has received personal compensation in the range of $500-$4,999 for serving as an officer or member of the Board of Directors for Dresden Internation University. The institution of Dr. Ziemssen has received research support from Novartis. The institution of Dr. Ziemssen has received research support from Merck. The institution of Dr. Ziemssen has received research support from Sanofi. The institution of Dr. Ziemssen has received research support from BMS. The institution of Dr. Ziemssen has received research support from Roche.
Virender Bhan, MD Dr. Bhan has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Biogen. Dr. Bhan has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. Dr. Bhan has received personal compensation in the range of $500-$4,999 for serving as a Consultant for EMD Serono. Dr. Bhan has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Dr. Bhan has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sanofi.
Jason Burton, MD (Freemantle Hospital) No disclosure on file
Olaf Hoffmann, MD (St.Josefs-Krankenhaus Potsdam) Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Merck. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. Dr. Hoffmann has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Merck. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Celgene. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sanofi. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sandoz. Dr. Hoffmann has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Novartis. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Biogen. Dr. Hoffmann has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Merck. Dr. Hoffmann has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Roche. Dr. Hoffmann has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Sanofi. The institution of Dr. Hoffmann has received research support from Biogen. The institution of Dr. Hoffmann has received research support from Novartis. The institution of Dr. Hoffmann has received research support from Sanofi.
Celia Oreja Guevara Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving as a Consultant for sanofi. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving as a Consultant for roche. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving as a Consultant for merck. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for merck. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for roche. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for sanofi. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for novartis. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for viatris. Celia Oreja Guevara has received personal compensation in the range of $0-$499 for serving on a Speakers Bureau for biogen. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for bms. Celia Oreja Guevara has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for jannsen.
No disclosure on file
Maria Trojano (Policlinico - Bari) Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Merck. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sanofi_Genzyme. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Janssen. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sandoz. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Biogen. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Merck. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Roche. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Sanofi-Genzyme. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Novartis. Maria Trojano has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for Janssen.
Patrick Vermersch (CHR de Lille) Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Biogen. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Merck. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sanofi. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Novartis. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for AB Science. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Imcyse. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for BMS-Celgene. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Ad Scientiam. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sanofi. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Teva. Patrick Vermersch has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for La revue des microbiotes. The institution of Patrick Vermersch has received research support from Roche. The institution of Patrick Vermersch has received research support from Sanofi.
Salvatore Napoli, MD (Neurology Center of New England) Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving as a Consultant for biogen. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Serono. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving as a Consultant for eisai. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving as a Consultant for bristol myers. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Bristol Myers Squibb. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for biogen. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for bristol myers. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for serono. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for eisai. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving on a Speakers Bureau for TG Therapeutics. Dr. Napoli has received personal compensation in the range of $500-$4,999 for serving as an Expert Witness for vaccine injury.
Augusto A. Miravalle, MD, FAAN (Rush University) Dr. Miravalle has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Genentech. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for EMD Serono. Dr. Miravalle has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Alexion. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for TG. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Amgen. Dr. Miravalle has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Genentech. Dr. Miravalle has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for EMD Serono. Dr. Miravalle has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for TG Therapeutics. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for BMS. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for EMD Serono. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for TG therapeutics. Dr. Miravalle has received personal compensation in the range of $10,000-$49,999 for serving on a Speakers Bureau for Amgen. The institution of Dr. Miravalle has received research support from Genzyme. The institution of Dr. Miravalle has received research support from EMD Serono. The institution of Dr. Miravalle has received research support from Alexion.
Yan Xu Yan Xu has nothing to disclose.
Jo Vandercappellen Jo Vandercappellen has received personal compensation for serving as an employee of Novartis Pharma AG.
Mudeer Khwaja No disclosure on file
No disclosure on file
Bianca Stadler, MD Dr. Stadler has received personal compensation for serving as an employee of Novartis.
Thomas Hach Thomas Hach has received personal compensation for serving as an employee of Novartis Pharma AG. Thomas Hach has received stock or an ownership interest from Novartis.
Gavin Giovannoni, MD (QMUL) Dr. Giovannoni has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Biogen. Dr. Giovannoni has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Sanofi. Dr. Giovannoni has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Merck KGaA. Dr. Giovannoni has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Roche-Genentech. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Moderna. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Sandoz. Dr. Giovannoni has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Astoria Biologica. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Zenas. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Biogen. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. Dr. Giovannoni has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Sanofi. Dr. Giovannoni has received personal compensation in the range of $5,000-$9,999 for serving on a Speakers Bureau for Medscape.