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Abstract Details

Preferences and Experiences of Women with Epilepsy Regarding Sexual and Reproductive Health Care
Epilepsy/Clinical Neurophysiology (EEG)
P17 - Poster Session 17 (11:45 AM-12:45 PM)
10-005
To understand the preferences and experiences of women with epilepsy (WWE) regarding healthcare counseling about sexual and reproductive health (SRH).
For WWE, unique disease-specific considerations regarding SRH impact decision-making around pregnancy and contraception. The 好色先生 recommends annual epilepsy-specific SRH counseling for WWE. However, the extent to which patients perceive that they receive optimal epilepsy-specific and patient-centered SRH counseling is unknown.  
We conducted individual semi-structured interviews with WWE ages 18-45 years, exploring their SRH care preferences and experiences. We audio-recorded and transcribed all interviews. Two coders used both inductive and deductive approaches to perform thematic analysis and identify key themes and representative quotes.

Twenty WWE completed interviews (median age 23 years; range 18-43 years). Key themes included: 1) WWE perceive that SRH counseling from neurologists, especially during adolescence and young adulthood, often either did not occur, was limited in scope, was confusing, or contained misinformation. Participants describe poor counseling about contraception, fertility, folic acid, and teratogenic medications, which impacted their reproductive decision-making; 2) WWE report fragmented care between their neurologist and other SRH providers; 3) WWE prefer that their neurologists, rather than other healthcare professionals, initiate routine comprehensive discussions about SRH; 4) SRH counseling should begin in adolescence and include private confidential discussions between neurologists and WWE; and 5) Successful SRH conversations between neurologists and WWE involve detailed information and support for the patient’s reproductive goals.

WWE desire comprehensive, coordinated and confidential counseling and care regarding SRH and epilepsy; however, they report suboptimal SRH care. Understanding the SRH preferences and experiences of WWE can inform interventions to optimize SRH counseling and care by healthcare professionals, especially during adolescence. 
Authors/Disclosures
Laura A. Kirkpatrick, MD (UPMC Children's Hospital of Pittsburgh)
PRESENTER
The institution of Dr. Kirkpatrick has received research support from American Epilepsy Society. The institution of Dr. Kirkpatrick has received research support from Child Neurologist Career Development Program. The institution of Dr. Kirkpatrick has received research support from Child Neurology Foundation. The institution of Dr. Kirkpatrick has received research support from Rosenau Family Research Foundation. The institution of Dr. Kirkpatrick has received research support from Society of Family Planning. The institution of Dr. Kirkpatrick has received research support from Pediatric Epilepsy Research Consortium. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Meeting Attendee with One8 Foundation. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Meeting Attendee with Brigham and Women's Hospital. Dr. Kirkpatrick has received personal compensation in the range of $0-$499 for serving as a Meeting Attendee with Pediatric Epilepsy Research Consortium. Dr. Kirkpatrick has received personal compensation in the range of $0-$499 for serving as a Grant reviewer with Society of Family Planning. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Norton Children's Hospital. Dr. Kirkpatrick has a non-compensated relationship as a Board of Directors member with My Epilepsy Story that is relevant to AAN interests or activities.
Elizabeth Harrison, MD (UPMC Children's Hospital of Pittsburgh) Dr. Harrison has nothing to disclose.
No disclosure on file
Anne R. Davis, MD (Columbia University Medical Center) Dr. Davis has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Exeltis. Dr. Davis has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Mylan . Dr. Davis has received personal compensation in the range of $500-$4,999 for serving as an Expert Witness for ACLU. Dr. Davis has received personal compensation in the range of $500-$4,999 for serving as an Expert Witness for Planned Parenthood Federation of America .
No disclosure on file
Yoshimi Sogawa, MD (Montefiore Medical Center) Dr. Sogawa has nothing to disclose.
No disclosure on file
No disclosure on file
Alexandra Urban, MD, FAAN (University of Pittsburgh School of Medicine) Dr. Urban has received personal compensation in the range of $0-$499 for serving as a Consultant for Neuropace. Dr. Urban has received personal compensation in the range of $0-$499 for serving as a Consultant for LivaNova.
Anne C. Van Cott, MD, FAAN (VA Pittsburgh Healthcare System/University of Pittsburgh) Dr. Van Cott has nothing to disclose.
Traci Kazmerski The institution of Traci Kazmerski has received research support from Cystic Fibrosis Foundation. The institution of Traci Kazmerski has received research support from NIH.