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Abstract Details

Neurologists Unite for Ukraine: Grassroots Movement Transformed into Lasting Collaboration
Global Health and Neuroepidemiology
P4 - Poster Session 4 (8:00 AM-9:00 AM)
10-013
To describe the work of a group of neurologists who have partnered with non-governmental organizations including Brother’s Brother Foundation (BBF) to provide (1) crisis relief and (2) sustainable support for Ukrainian neurology patients during the Russian invasion.
In the days following the Russian invasion of Ukraine, war and displacement quickly created many unanticipated needs. This included access to anti-seizure medications, placing estimated 250,000 of people with epilepsy at risk for serious injury and death.  Dr. Olha Tychivska shared the challenges in obtaining medication for her patients with her North American neurology colleagues.

Utilizing social media and professional connections to catalyze rapid relief efforts, a small group of neurology providers from across the country joined forces to support Ukrainian neurology patients. A partnership with BBF and other non-profit organizations allowed this group to fundraise, procure, and safely deliver neurology medications to Ukraine, as Ukrainian neurologists directed needs and ascertained ethical use of medications and supplies. As the collaboration evolved, new needs for patients with neurologic injury surfaced, including traumatic brain injury and limb amputation.

Over 450,000 dollars have been raised and donated to date, with minimal overhead cost, towards neurology efforts. These include anti-seizure medications and equipment (EEG machine, VNS tablet/wand, and neurorehabilitation equipment). Additionally, a seizure resource guide was created, translated, and widely distributed.

Grassroot movements can serve as catalysts for aid, as their dynamic model can address local needs in an effective and timely manner. We hope that this effort will serve as a roadmap for future efforts, and as a model of how neurologists can respond during future humanitarian crises to serve vulnerable patients.

Authors/Disclosures
Christina Briscoe Abath, MD
PRESENTER
The institution of Dr. Briscoe Abath has received research support from Harvard Medical School. Dr. Briscoe Abath has a non-compensated relationship as a Board of Trustees Member with Brother's Brother Foundation that is relevant to AAN interests or activities. Dr. Briscoe Abath has a non-compensated relationship as a Professional Advisory Board with Epilepsy Foundation that is relevant to AAN interests or activities.
No disclosure on file
Aristides Hadjinicolaou, MD (CHU Sainte-Justine) Dr. Hadjinicolaou has nothing to disclose.
No disclosure on file
Irina A. Anselm, MD Dr. Anselm has nothing to disclose.
Danielle Friedman, NP Ms. Friedman has nothing to disclose.
Alina Ivaniuk, MD Dr. Ivaniuk has nothing to disclose.
Elaine C. Wirrell, MD, FAAN (Mayo Clinic/Dept of Child Neurology) Dr. Wirrell has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Biocodex. Dr. Wirrell has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Encoded. Dr. Wirrell has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Neurocrine. Dr. Wirrell has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for GRIN. Dr. Wirrell has received publishing royalties from a publication relating to health care.
Alina Sharinn, MD (Midtown Neurology MD) Dr. Sharinn has nothing to disclose.
Alexander Paciorkowski, MD The institution of Dr. Paciorkowski has received research support from University of Rochester.
Yuliya Snyder, MD (Rochester Regional Health) Dr. Snyder has nothing to disclose.
Mike Corcoran No disclosure on file
No disclosure on file
Ozzy Samad (Brother's Brother Foundation) Mr. Samad has received personal compensation for serving as an employee of Brother's Brother Foundation.
Agnieszka Kielian, MD Dr. Kielian has nothing to disclose.
Svetlana Faktorovich, MD, FAAN (Marcus Neuroscience Institute) Dr. Faktorovich has a non-compensated relationship as a member of the Board of Trustees with Brother's Brother Foundation that is relevant to AAN interests or activities.