Abstract Details

Title Feasibility of a Home-Based Exergame Therapy for Youth with Spinal Muscular Atrophy

Topic Child Neurology and Developmental Neurology

Presentation(s) P7 - Poster Session 7 (8:00 AM-9:00 AM)

Poster/Presentation
Number 4-005

Objective

To assess the feasibility of a fit-for-purpose exergaming intervention in youth (6-18 years old) with spinal muscular atrophy (SMA) and neurotypical controls.

Background The nature of how best to promote the recommended frequency of physical activity in youth with SMA is evolving. The use of active videogames for rehabilitation (exergaming) has a positive impact on motivation towards training, is flexible in scheduling, and has proven impact on enhancing strength, coordination, and mobility in other conditions. We have developed a home-based exergame (Tales from the Magic Keep^TM) specifically for youth with neuromuscular disorders in which functional upper limb and trunk movements are tracked by the Microsoft® Kinect Azure sensor.

Design/Methods

We conducted a 4-week open label feasibility study across two Canadian sites. The exergaming intervention was used at home by participants at a target dose of 20 minutes four times a week. Feasibility of the game was determined by assessing adherence, acceptability, and need for game adaptation. Adherence was quantified by the motion detector from the Azure Microsoft Kinect Platform and verified against a weekly participant reported log. A Likert scale was used to evaluate the perceived value, experience, satisfaction, and need for adaptation regarding the exergame. Usability was assessed using the System Usability Scale.

Results Ten youth with SMA and five neurotypical controls were enrolled. Results of the feasibility study will be presented.

Conclusions Exergaming was found to be acceptable and enjoyable to youth with a wide range of abilities. Therapy gamification has the potential to increase physical activity in youth with SMA and other neuromuscular disorders.

Authors/Disclosures
Maryam Oskoui, MD, FAAN (Montreal Children's Hospital - McGill University Health Centre) PRESENTER	Dr. Oskoui has received personal compensation in the range of $500-$4,999 for serving as an officer or member of the Board of Directors for the Association des Neurologues du Quebec. The institution of Dr. Oskoui has received research support from Hoffmann-La Roche Ltd. The institution of Dr. Oskoui has received research support from Muscular Dystrophy Canada. The institution of Dr. Oskoui has received research support from Canadian Institutes of Health Research. The institution of Dr. Oskoui has received research support from Santhera. The institution of Dr. Oskoui has received research support from Novartis. The institution of Dr. Oskoui has received research support from Fonds de Recherche du Québec. Dr. Oskoui has a non-compensated relationship as a Member of the Medical and Scientific Advisory Committee with Muscular Dystrophy Canada that is relevant to AAN interests or activities.
Kathy Selby, MD (U of BC Childrens Hospital)	The institution of Dr. Selby has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Roche. The institution of Dr. Selby has received research support from Biogen . The institution of Dr. Selby has received research support from Italfarmico. The institution of Dr. Selby has received research support from Reverogen.
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Renee Haldenby	Renee Haldenby has received personal compensation for serving as an employee of Hoffmann-LaRoche Ltd.
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Shaainthabie Karthigesu, PT	Miss Karthigesu has nothing to disclose.
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Jean K. Mah, MD, FRCPC, FAAN (University of Calgary)	Dr. Mah has nothing to disclose.
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