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Abstract Details

Unmet Care Needs for Patients with Dementia and Their Caregivers in Zambia
Aging, Dementia, and Behavioral Neurology
P5 - Poster Session 5 (5:30 PM-6:30 PM)
9-017
To assess the prevalence of unmet care needs of community-based people with dementia (PWD) and their informal caregivers in Lusaka, Zambia 
With a growing number of PWD across the world, identifying a source of regular caregiving for PWD has become a routine practice. In lower-income settings, informal caregivers assume this responsibility and serve as an interface between PWD and health services. PWD together with their caregivers have needs that relate to care, services and support which increase the risk of undesirable health outcomes. 

This was a cross-sectional study of pairs of PWD and their primary informal caregiver.  Participants underwent interviews to assess dementia-related needs using the Johns Hopkins Dementia Care Needs Assessment.  Bivariable and multivariable regression analyses were conducted to identify demographic, clinical, functional and quality of life correlates of unmet needs as well as identify the independent predictors of unmet needs among PWD and their informal caregivers
The mean proportion of unmet needs for PWD was 57% while that of caregivers was 62%. Significantly higher unmet needs were associated with having attained less than a tertiary education and having an unknown type of dementia. PWD had unmet needs in the domains of meaningful activities, legal issues and advance care planning, and resource referral while caregivers had the most significant unmet needs in the domains of community resources, respite, and mental health counseling. 

The study identified that PWD in Zambia and their informal caregivers had a high prevalence of unmet care needs in multiple domains, highlighting the need for a more comprehensive and holistic approach to dementia care in resource-limited settings like Zambia. Future studies of locally contextualized interventions to improve care for PWD and their informal caregivers are urgently needed in Zambia and other similar settings.
Authors/Disclosures
Faith Simushi, MD (University Teaching Hospital)
PRESENTER 		Dr. Simushi has received research support from American Neurological Association - ANA.
Jeremy Tanner, MD (UTHSA - Neurology) An immediate family member of Dr. Tanner has received personal compensation for serving as an employee of Channeling Hope Foundation. The institution of Dr. Tanner has received research support from NIA, NINDS. Dr. Tanner has a non-compensated relationship as a Chief Scientific Officer with Channeling Hope Foundation that is relevant to AAN interests or activities.
Stanley Zimba, MBBS (University Teaching Hospital) Dr. Zimba has nothing to disclose.
Deanna Saylor, MD, MHS (Johns Hopkins Hospital) Dr. Saylor has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for 好色先生. The institution of Dr. Saylor has received research support from National Institutes of Health. The institution of Dr. Saylor has received research support from 好色先生. Dr. Saylor has a non-compensated relationship as a Member of multiple committees and task forces focused on improving access to MS medications to people across the world with Multiple Sclerosis International Federation that is relevant to AAN interests or activities. Dr. Saylor has a non-compensated relationship as a Member of the Neurology and COVID19 committee with World Health Organization that is relevant to AAN interests or activities. Dr. Saylor has a non-compensated relationship as a Member of the International Outreach Committee, Junior and Early Career Membership Committee, and 好色先生al Innovation Commitees with American Neurological Association that is relevant to AAN interests or activities.