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Abstract Details

Depictions of Pediatric Neurological Disabilities in Graphic Novels, 2010-2022
History of Neurology
P1 - Poster Session 1 (8:00 AM-9:00 AM)
1-013

NA

Graphic novels - long, book-length works of sequential art - were relatively rare in children's literature before 2010, when books like Raina Telgemeier's autobiographical Smile set off a publishing phenomenon. Now these works are an omnipresent part of children's literature, capable of conveying difficult concepts through the combination of words and art.

A. and E. Christy and Y-M. and J. Kim reviewed popular graphic novels intended for children and young adults and sought depictions of pediatric neurological disorders. A group of pediatric neurologists, along with a school librarian, a children's "book-stagrammer," and a 13-year-old reader, read selected books and met online to discuss themes related to disability.

We identified four major graphic novels: El Deafo, by Cece Bell; Stargazing, by Jen Wang; Sepak Up! by Rebecca Burgess, and When Stars are Scattered by Victoria Jamieson and Omar Mohamed, in which neurologic disabilities are central to the story: meningitis leading to hearing loss; a brain tumor causing seizures; autism; and a sibling with epilepsy and intellectual disabilities, respectively.

Themes related to medical and social models of disability; to privacy and sharing with the wider world; to caregiver worries and fears; and to disability as identity and as a strength were seen in each of these graphic novels.

The medium of the graphic novel can use visual art and story to potently convey the experience of the person with neurologic disability - or the caregiver - as a mirror for children with disabilities, or as a window to aid in understanding for those without.

Themes of disability and ableism are present in the graphic novels we read. These can be recommended to patients and families, or read by providers to better understand the patient experience of disability.

Authors/Disclosures
Alison L. Christy, MD, PhD, FAAN
PRESENTER
Dr. Christy has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Azurity. Dr. Christy has received personal compensation in the range of $10,000-$49,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for SAGE Publishing. Dr. Christy has received personal compensation in the range of $500-$4,999 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for MDLinx. The institution of Dr. Christy has received research support from Biohaven. The institution of Dr. Christy has received research support from Novartis / Amgen. The institution of Dr. Christy has received research support from Eli Lilly. The institution of Dr. Christy has received research support from Abbvie.
Dorottya Kacsoh, MD Dr. Kacsoh has nothing to disclose.
Maya Ayoub, MD, EdM (UCLA PEDS NEURO) Dr. Ayoub has nothing to disclose.
Diana M. Cejas, MD (University of North Carolina at Chapel Hill, Child Neurology) The institution of Dr. Cejas has received research support from Autism Intervention Research Network on Physical Health. The institution of Dr. Cejas has received research support from Patient Centered Outcomes Research Institute. The institution of Dr. Cejas has received research support from Lucille Packard Foundation. The institution of Dr. Cejas has received research support from Health Resources and Services Administration. The institution of Dr. Cejas has received research support from Barnhill Family Foundation. The institution of Dr. Cejas has received research support from Eunice Kennedy Shriver National Institute of Child Health and Human Development. Dr. Cejas has received personal compensation in the range of $500-$4,999 for serving as a National Disability Advisory Board Member with Centene Managed Care Company. Dr. Cejas has received personal compensation in the range of $500-$4,999 for serving as a Advisory Panel on Healthcare Delivery and Disparities Research Co-Chair with Patient Centered Outcomes Research Institute.
Danielle G. Barber, MD, PhD (Children's Hospital of Philadelphia, Child Neurology) The institution of Dr. Barber has received research support from NIH.
Yolanda Holler-Managan, MD, FAAN (Lurie Children'S At Central DuPage Hospital) Dr. Holler-Managan has nothing to disclose.
Young-Min Kim, MD (Loma Linda University Faculty Medical Group) Dr. Kim has nothing to disclose.
Talia S. Shear, MD Dr. Shear has nothing to disclose.
No disclosure on file
No disclosure on file
No disclosure on file