Abstract Details

Title Acceptability and Efficacy of a Novel Parkinson’s Care Partner Training Program

Topic Movement Disorders

Presentation(s) P4 - Poster Session 4 (11:45 AM-12:45 PM)

Poster/Presentation
Number 3-011

Objective Provide comprehensive, effective, interactive training to a diverse global community of Parkinson's care partners.

Background In a survey by the Davis Phinney Foundation, 86% of 752 respondents said being a Parkinson’s care partner is the hardest thing they have ever done. In a separate care partner survey, 93% of respondents lacked formal training on caring for someone with Parkinson’s, and 75% requested specific training on advanced symptoms, medication management, and caregiver self-care. In response, our community-academic partnership developed a novel educational intervention.

Design/Methods Via targeted emails through the Davis Phinney Foundation, we advertised an informational webinar, “Live Well and Thrive as a Parkinson’s Care Partner”. The host emphasized three domains—knowledge, support, and skills—and invited participants to register for a 10-session, 17-hour Parkinson’s Care Partner Training Program comprised of interactive discussions of 21 Parkinson’s-related topics from a movement disorder neurologist and implementation scientist, registered nurse, clinical social worker, and registered dietitian. The clinician and host discuss the topic and respond to participant questions in real-time; sessions are recorded for asynchronous viewing. Participants anonymously completed baseline demographic surveys and a Parkinson’s knowledge test. The latter will be repeated post-intervention with questions on relevance of topics covered, instructor effectiveness, overall satisfaction, and likelihood of recommending the class to other care partners. A 70% cutoff for the latter indicates excellent educational programming. Within-group change will be assessed via t-tests.

Results Registration for the informational webinar was 1,351, with 851 opting in to the 10-session training (63% enrollment rate; 82% female, 83% >60 years). At baseline, only 7.5% of participants scored >70/100 on a Parkinson’s knowledge test. 150-350 care partners have joined sessions 1-5 synchronously; the remainder, asynchronously; interim feedback has been overwhelmingly positive.

Conclusions A comprehensive, live-streamed, 10-session educational series for Parkinson’s care partners yielded high enrollment and engagement after five sessions; final sessions and analyses are forthcoming.

Authors/Disclosures
Jori Fleisher, MD, MSCE, FAAN (Rush University Parkinson's and Movement Disorders Program) PRESENTER	The institution of Dr. Fleisher has received research support from Parkinson's Foundation. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIH/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. The institution of Dr. Fleisher has received research support from NIA/NINDS. Dr. Fleisher has received publishing royalties from a publication relating to health care. Dr. Fleisher has received personal compensation in the range of $0-$499 for serving as a Speaker with Parkinson's Foundation. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Lewy Body Dementia Association. Dr. Fleisher has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Davis Phinney Foundation. Dr. Fleisher has a non-compensated relationship as a Editorial Board Member with AAN Brain & Life Magazine that is relevant to AAN interests or activities.
Melani Dizon (Davis Phinney Foundation)	No disclosure on file
Polly Dawkins (Davis Phinney Foundation)	No disclosure on file

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