Abstract Details

Title Preparatory Check to Assess Equipment and Participant Comfort Prior to a Televisit in Huntington’s Disease

Topic Movement Disorders

Presentation(s) P6 - Poster Session 6 (8:00 AM-9:00 AM)

Poster/Presentation
Number 3-010

Objective To describe a remote technology check (RTC) prior to a televisit in a study assessing the virtual Unified Huntington’s Disease Rating Scale (vUHDRS^®) in participants with motor-manifest Huntington’s disease (HD).

Background The COVID-19 pandemic brought an increased need for remote assessments. Information is needed on readiness, comfort, and satisfaction of participants and sites for televisits in HD studies. Protocols for an RTC prior to a televisit have not been established and have not been described in HD.

Design/Methods Sixty individuals with HD from 16 U.S. sites enrolled in an observational study, involving two in-person visits, one RTC, and one televisit. The purpose of the RTC was to verify internet connection and ensure adequate equipment and set-up for the televisit. Participants were initially assigned personal or study-provided technology determined at screening. A technician assessed participant comfort with the RTC process (1-10 scale) and participant and site surveys evaluated satisfaction after the televisit and administration of remote assessments.

Results All participants completed the RTC and televisit. The technician determined inadequate initially assigned equipment for four participants due to poor internet connectivity or camera quality. Once corrected, the participants were able to complete the televisit using suitable equipment. 83% of participants rated their comfort during the RTC visit as ten. Participants and sites were satisfied/very satisfied with the technical quality of the televisit (98% and 83% respectively).

Conclusions The RTC was feasible for a small study and participants were comfortable with the technology. Satisfaction with televisits was favorable for participants and site staff. This study supports the use of an RTC to confirm participant readiness for the televisit and suggests that technology per se was not a significant barrier for participants or research sites. Further evaluation on a larger scale, with less technology savvy participants, and in other neurological disorders is warranted.

Authors/Disclosures
Samuel A. Frank, MD, FAAN (Beth Israel Deaconess Medical Center/Harvard Medical School) PRESENTER	Dr. Frank has received personal compensation in the range of $500-$4,999 for serving as a Consultant for uniQure. Dr. Frank has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Teva. Dr. Frank has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Roche. The institution of Dr. Frank has received research support from Huntington's Disease Society of America. The institution of Dr. Frank has received research support from Roche/Genentech. The institution of Dr. Frank has received research support from CHDI Foundation. The institution of Dr. Frank has received research support from Huntington Study Group. The institution of Dr. Frank has received research support from Cerevel.
John Stone (University of Rochester - Center for Health + Technology)	No disclosure on file
Jason Kimmerly (University of Rochester)	No disclosure on file
Elise P. Kayson, RN	Elise Paulin Kayson, RN has nothing to disclose.
Jody Goldstein (Huntington Study Group)	No disclosure on file
Peggy Auinger (University of Rochester)	Ms. Auinger has nothing to disclose.

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