好色先生

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Abstract Details

Preferences of Adolescents and Young Adults with Epilepsy and Caregivers on Reproductive Health Counseling by Neurologists: A Concept Mapping Study
Epilepsy/Clinical Neurophysiology (EEG)
P1 - Poster Session 1 (11:45 AM-12:45 PM)
9-005
To use concept mapping to ascertain preferences of people with epilepsy of child-bearing potential (PWECP) ages 14-26 years and caregivers for reproductive health counseling by neurologists.
The 好色先生 (AAN) recommends that neurologists counsel PWECP ages 12-44 years old annually about at least two of three topics: folic acid, interactions between antiseizure medications (ASMs) and contraceptives, and ASM effects on pregnancy and/or fetal/child development. However, guideline development did not include the perspectives of younger PWECP or caregivers.  
We recruited PWECP ages 14-26 years and caregivers from one institution's child neurology clinics, a research registry, and epilepsy-related listservs. Participants: 1) generated topics about epilepsy and reproductive health important for neurologist counseling of PWECP ages 14-26 years, 2) sorted topics into conceptually-related categories, and 3) rated topics' importance on 5-point Likert scales for PWECP ages 14-17 and 18-26 years.

Thirty-four PWECP and 20 caregivers generated 37 topics, which were sorted/rated by 35 PWECP and 23 caregivers. Consensus categories included "Contraception," "Hormonal changes" (including hormonal influences on seizures, catamenial epilepsy), "Sex and Epilepsy" (including sexual function, relationships), "Parenthood with Epilepsy" (including heritability/genetics, post-partum concerns), "Pregnancy with Epilepsy" (including effects of seizures/ASMs during pregnancy), and "Preparing for Pregnancy" (including planning, folic acid, fertility). There was a negligible positive correlation (r=0.05) between importance for ages 14-17 and 18-26. For ages 14-17 years, categories rated at least 4/5 for importance included "Contraception" (4.50/5), "Sex and Epilepsy" (4.32/5), "Hormonal Changes" (4.3/5)," and "Preparing for Pregnancy" (4.12/5). For ages 18-26 years, all categories were rated at least 4/5: "Pregnancy with Epilepsy" (4.64/5), "Preparing for Pregnancy" (4.56/5), "Contraceptives" (4.51/5), "Parenthood with Epilepsy" (4.48/5), "Sex and Epilepsy" (4.47/5), and "Hormonal Changes" (4.21/5).

PWECP ages 14-26 want counseling about reproductive health and epilepsy from neurologists that is more comprehensive than current AAN recommendations and tailored by age.
Authors/Disclosures
Christina Briscoe Abath, MD
PRESENTER 		The institution of Dr. Briscoe Abath has received research support from Harvard Medical School. Dr. Briscoe Abath has a non-compensated relationship as a Board of Trustees Member with Brother's Brother Foundation that is relevant to AAN interests or activities. Dr. Briscoe Abath has a non-compensated relationship as a Professional Advisory Board with Epilepsy Foundation that is relevant to AAN interests or activities.
Laura A. Kirkpatrick, MD (UPMC Children's Hospital of Pittsburgh) The institution of Dr. Kirkpatrick has received research support from American Epilepsy Society. The institution of Dr. Kirkpatrick has received research support from Child Neurologist Career Development Program. The institution of Dr. Kirkpatrick has received research support from Child Neurology Foundation. The institution of Dr. Kirkpatrick has received research support from Rosenau Family Research Foundation. The institution of Dr. Kirkpatrick has received research support from Society of Family Planning. The institution of Dr. Kirkpatrick has received research support from Pediatric Epilepsy Research Consortium. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Meeting Attendee with One8 Foundation. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Meeting Attendee with Brigham and Women's Hospital. Dr. Kirkpatrick has received personal compensation in the range of $0-$499 for serving as a Meeting Attendee with Pediatric Epilepsy Research Consortium. Dr. Kirkpatrick has received personal compensation in the range of $0-$499 for serving as a Grant reviewer with Society of Family Planning. Dr. Kirkpatrick has received personal compensation in the range of $500-$4,999 for serving as a Speaker with Norton Children's Hospital. Dr. Kirkpatrick has a non-compensated relationship as a Board of Directors member with My Epilepsy Story that is relevant to AAN interests or activities.
Erin Friel Miss Friel has nothing to disclose.
Jasmin Rivero-Guerra, Student-Worker Ms. Rivero-Guerra has nothing to disclose.
Amy K. Tao Ms. Tao has nothing to disclose.
Janani Kassiri, MD, PhD Dr. Kassiri has nothing to disclose.
Marie E. Clements, MD (Cincinnati Children's Hospital Medical Center) Dr. Clements has nothing to disclose.
Page B. Pennell, MD, FAAN (University of Pittsburgh School of Medicine) The institution of Dr. Pennell has received research support from NIH.
Jessica Burke, PhD Dr. Burke has nothing to disclose.
Sara E. Baumann, PhD Dr. Baumann has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant with Projet Jeune Leader (NGO). Dr. Baumann has received personal compensation in the range of $500-$4,999 for serving as a Consultant with Asian Disaster Preparedness Center.
Traci Kazmerski The institution of Traci Kazmerski has received research support from Cystic Fibrosis Foundation. The institution of Traci Kazmerski has received research support from NIH.