The aim of this study is to examine the alignment between SSQOL domains and stroke survivors’ perceptions on physical wellbeing using a mixed methods exploratory sequential study design.

The SSQOL is a stroke-specific measure comprising of domains to assess the functional status and health-related quality of life. While the SSQOL has been validated previously, studies have not examined the congruence between SSQOL domains and stroke survivors’ perspectives through qualitative methods, which could provide insights into whether the SSQOL comprehensively captures relevant aspects of physical wellbeing.

Twelve stroke survivors and caregivers were recruited to participate in virtual focus group discussions on factors that influence physical wellbeing. A semi-structured interview guide was developed to assess physical wellbeing. The SSQOL was administered after focus group sessions. Interviews were transcribed and coded using NVivo software. Using the framework method analysis, three independent coders analyzed transcripts, generated codes, and identified key themes related to physical wellbeing in stroke survivors.

Analysis of qualitative data revealed three major themes: (1) impact of loss of independence on physical wellbeing; (2) feelings of shame affecting reintegration within communities; (3) challenges in the home environment due to limited mobility. Findings indicate that while stroke survivors’ perceptions of mobility were effectively captured by the SSQOL, it did not adequately reflect perceptions on loss of independence and feelings of shame.

The findings suggest that perceptions related to mobility and balance aligned with the SSQOL, while experiences related to loss of independence and shame were not captured by the SSQOL. While this study examined only physical wellbeing, future studies should consider exploring additional relevant aspects related to wellbeing and their alignment with stroke-specific measures, leading to improved understanding of quality of life within this population.