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Abstract Details

Resilience and Recovery: Exploring the Spectrum of Physical Wellbeing in Ischemic and Hemorrhagic Stroke Survivors Through Diverse Therapy Experiences
Cerebrovascular Disease and Interventional Neurology
P12 - Poster Session 12 (11:45 AM-12:45 PM)
14-012

We aim to identify themes related to a stroke survivor’s experience with therapy (physical, occupational, speech, behavioral) and how it pertains to physical wellbeing. 

Stroke is the leading cause of long-term disability in the United States; 15–30% of stroke survivors have severe disability, and nearly 75% have some degree of dysfunction. Although there is ample quantitative research regarding post-stroke disability there is extremely limited research exploring the subjective experience of physical wellbeing among stroke survivors. 

This is a multi-center mixed methods study of stroke (ischemic or hemorrhagic) survivors or their caregivers who participate in virtual focus groups. Using structured interview guides, participants discuss aspects of wellbeing. Sessions are recorded on Zoom and transcribed using NVivo software. Using the framework method analysis, a comprehensive codebook was developed, and thematic findings were compared and reconciled to ensure consistency and accuracy.

Eleven participants attended the physical wellbeing sessions (average age 60 years old, 36% Male). Four key themes related to participants' experience with therapy and physical wellbeing were identified: 

?  好色先生: Stronger need for education regarding the importance of specific exercises and consequences for not doing them.

?  Personalization: Necessity of personalized therapy approaches.

?  Prioritizing: Importance of being given certain exercises to focus on and feeling overwhelmed by extensive lists.

?  Motivators: Intrinsic motivators (family) and extrinsic motivators (ability to drive) kept participants engaged in therapy and encouraged perseverance through recovery.

This study emphasizes the significance of therapy, as it relates to the physical wellbeing for stroke survivors. More tailored programs, with specific and personalized education were emphasized. Future studies are needed to better understand how to effectively leverage therapies to improve patient outcomes. 

Authors/Disclosures
Sofia Constantinescu, BS
PRESENTER
Ms. Constantinescu has nothing to disclose.
Rachel Kitagawa (Yale School of Medicine) Ms. Kitagawa has nothing to disclose.
Devanshi Choksi, MD, MPH Dr. Choksi has nothing to disclose.
Sophia E. DeLuca, BA Miss DeLuca has received personal compensation for serving as an employee of Wilson Center Maternal Health Initiative. Miss DeLuca has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Khushi Baby.
Jonathan Rosand, MD (Massachusetts General Hospital) Dr. Rosand has received personal compensation for serving as an employee of Massachusetts General Hospital. Dr. Rosand has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Eli Lilly and Co. Dr. Rosand has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Elsevier. The institution of Dr. Rosand has received research support from NIH. The institution of Dr. Rosand has received research support from American Heart Association. Dr. Rosand has received personal compensation in the range of $0-$499 for serving as a Peer reviewer with National Institutes of Health. Dr. Rosand has a non-compensated relationship as a Trustee with Columbia University that is relevant to AAN interests or activities.
Lauren H. Sansing, MD Dr. Sansing has nothing to disclose.
Kevin N. Sheth, MD, FAAN (Yale UniversityDivision of Neuro and Critical Care) Dr. Sheth has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Ceribell. Dr. Sheth has received personal compensation in the range of $500-$4,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Zoll. Dr. Sheth has received personal compensation in the range of $10,000-$49,999 for serving on a Scientific Advisory or Data Safety Monitoring board for NControl. Dr. Sheth has received stock or an ownership interest from Astrocyte. Dr. Sheth has received stock or an ownership interest from Alva. The institution of Dr. Sheth has received research support from Biogen. The institution of Dr. Sheth has received research support from Novartis. The institution of Dr. Sheth has received research support from Bard. The institution of Dr. Sheth has received research support from Hyperfine. Dr. Sheth has received intellectual property interests from a discovery or technology relating to health care.
Emilie Egger, PhD Dr. Egger has nothing to disclose.
Guido J. Falcone, MD (Yale School of Medicine) The institution of Dr. Falcone has received research support from NIH. The institution of Dr. Falcone has received research support from AHA.
Nirupama Yechoor, MD (MassGeneral Brigham) Dr. Yechoor has nothing to disclose.
Rachel Forman, MD (Yale Neurology) Dr. Forman has nothing to disclose.