Abstract Details

Title Putting MINDSET Action Plans into Action

Topic Epilepsy/Clinical Neurophysiology (EEG)

Presentation(s) P2 - Poster Session 2 (8:00 AM-9:00 AM)

Poster/Presentation
Number 9-010

Objective

To describe integration of the MINDSET decision aid with individualized interventions in a comprehensive epilepsy clinic.

Background

MINDSET, a Managing Epilepsy Well (MEW) decision aid, creates action plans highlighting key areas for self-management. CareTuner, a neurology remote monitoring system, allows tracking of many epilepsy lifestyle behaviors (medication, sleep, seizures, and mood) through a patient app (EpiDiary). We leveraged Mindset's action plans and CareTuner-based interventions and tracking to achieve shared and realistic self-management goals.

Design/Methods

Data was collected from February to October 2024. Epilepsy patients (n=26) completed the MINDSET questionnaire on seizure control, medication adherence, lifestyle, depression, quality of life, and self-management. Generated action plans identified areas for improvement and patients’ goals. Health care providers utilized MINDSET during clinic visits to collaboratively prioritize areas to address. Interventions included patient education, prescription of CareTuner, or referral to MEW self-management programs (PACES). Changes in self-management were confirmed with CareTuner.

Results

All (100%, n=26) patients were flagged by MINDSET as needing to improve at least one lifestyle behavior. Nearly half (46%, n=12) reported never, rarely, or sometimes tracking their seizures, but only one selected seizure tracking as their top goal. A third (34%, n=9) needed improvement in medication adherence behaviors. Most patients selected using reminders to take seizure medications (n=4) or not spreading out time between doses when medications are running out (n=3) as one of their goals. The CareTuner app was implemented in 12/26 (46%), allowing confirmation of seizure tracking, medication adherence, or sleep behaviors. Examples will be provided. The majority of patients selected improvement in social interactions as a goal, and were referred to an in-clinic PACES program or to Epilepsy Foundation support groups.

Conclusions

MINDSET fosters efficient physician-patient discussions during clinical visits, enabling development of personalized interventions. A remote therapeutic monitoring app (CareTuner) can confirm and reinforce positive self-management behaviors.

Authors/Disclosures
Mawj Alzakar PRESENTER	Ms. Alzakar has nothing to disclose.
Patty J. Gonzales	Mr. Gonzales has nothing to disclose.
Katarzyna Czerniak, MLA, MPH	Miss Czerniak has nothing to disclose.
Ross Shegog, PhD	Dr. Shegog has nothing to disclose.
Cate Brocker, NP	Mrs. Brocker has received personal compensation for serving as an employee of Epilepsy Foundation.
Alison Kukla (Partners Against Mortality in Epilepsy)	Alison Kukla has received personal compensation for serving as an employee of Epilepsy Foundation of America. Alison Kukla has received personal compensation for serving as an employee of Dartmouth Health. Alison Kukla has received personal compensation in the range of $500-$4,999 for serving as a Consultant for UCB Biosciences Inc. Alison Kukla has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Neurelis. Alison Kukla has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant with International Bureau for Epilepsy. Alison Kukla has received personal compensation in the range of $50,000-$99,999 for serving as a PAME, Senior Advisor with American Epilepsy Society.
Caryn Seebach, PsyD	Dr. Seebach has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for CareTuner. Dr. Seebach has stock in CareTuner.
Eyal Bartfeld, DMD	Dr. Bartfeld has stock in Caretuner Inc.
Susan T. Herman, MD, FAAN (Barrow Neurological Institute)	The institution of Dr. Herman has received personal compensation in the range of $5,000-$9,999 for serving as a Consultant for Bioserenity. Dr. Herman has received personal compensation in the range of $500-$4,999 for serving as an officer or member of the Board of Directors for National Association of Epilepsy Centers. Dr. Herman has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Current Treatment Options in Neurology. Dr. Herman has received personal compensation in the range of $0-$499 for serving as an Editor, Associate Editor, or Editorial Advisory Board Member for Journal of Clinical Neurophysiology. The institution of Dr. Herman has received research support from Epilepsy Foundation; Epilepsy Learning Healthcare System. The institution of Dr. Herman has received research support from CREMedical. The institution of Dr. Herman has received research support from NIH/NINDS. The institution of Dr. Herman has received research support from Marinus. The institution of Dr. Herman has received research support from Neuroelectrics, Inc. Dr. Herman has received personal compensation in the range of $500-$4,999 for serving as a Medical Director, Neurodiagnostics Program with Laboure College. Dr. Herman has a non-compensated relationship as a Professional Advisory Board member with Epilepsy Foundation that is relevant to AAN interests or activities.

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