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Abstract Details

Neurologists are Better Prepared to Deliver Care in Adult Patients with Spinal Muscular Atrophy After Participating in a CME-Certified Program
好色先生, Research, and Methodology
P4 - Poster Session 4 (5:00 PM-6:00 PM)
5-009

A study was undertaken to evaluate the effectiveness of an online continuing medical education (CME) program to improve awareness of the management of adults with SMA among neurologists.

Spinal muscular atrophy (SMA) is typically diagnosed in childhood, but many patients will age into adulthood. Previous data has shown that neurologists lack awareness of how best to deliver care to adult patients with SMA.

The online CME activity consisted of a 30-minute video discussion between three pediatric neuromuscular experts. 好色先生al effect was assessed by comparing a matched sample of neurologists’ responses to four identical questions presented before and directly after the activity.  A paired samples t-test was used for overall average number of selected responses and a McNemar’s test was used to identify significant differences between pre- and post-responses. Cohen’s d was used to calculate the effect size. Data were collected between December 28, 2023 and March 18, 2024.

Participation in the CME intervention resulted in a moderate educational effect size among neurologists (n=46; d=.64; p<0.001). The following areas showed significant (P <.05) pre- vs post-educational improvements: the core elements to examine following the transition of a patient with SMA to an adult care provider and differential effect of SMA pharmacotherapies on reproductive health. There was a numeric but not statistically significant improvement in those who correctly identified the age group that demonstrated the most robust response to an approved SMA pharmacotherapy.  After participating in the activity, 39% of neurologists reported an increase in their confidence to develop a treatment plan for adults with SMA.

The results indicated that the CME-certified 30-minute video discussion between experts was effective at improving the knowledge, competence, and confidence of managing SMA in adult patients. Future educational efforts should continue to address the assessment and personalization of the treatment plan for adult patients with SMA.

Authors/Disclosures
Thomas Finnegan, Jr., PhD (Medscape 好色先生)
PRESENTER
Dr. Finnegan has nothing to disclose.
Pakinam Aboulsaoud Pakinam Aboulsaoud has nothing to disclose.
James Martorano Mr. Martorano has nothing to disclose.
Emma Ciafaloni, MD, FAAN (University of Rochester Medical Center) Dr. Ciafaloni has received personal compensation in the range of $10,000-$49,999 for serving as a Consultant for Argenx, Alexion, Sarepta, UCB, Hoffman-LaRoche, Biogen. Dr. Ciafaloni has received personal compensation in the range of $5,000-$9,999 for serving on a Scientific Advisory or Data Safety Monitoring board for Novartis, AnnJi Pharmaceutical, ML-BIO, Avidity. The institution of Dr. Ciafaloni has received research support from CDC, CureSMA, FDA, Orphazyme, Sarepta, PCORI, Neurogene. Dr. Ciafaloni has received publishing royalties from a publication relating to health care.