Abstract Details

Title The PD Movers: Moving Out in the World

Topic Movement Disorders

Presentation(s) P4 - Poster Session 4 (5:00 PM-6:00 PM)

Poster/Presentation
Number 5-027

Objective

Measure the impact of an educational resource for Parkinson’s Disease (PD) in Members of the Black Diaspora (MBD) created using a Community Based Participatory Research (CPBR) approach.

Background MBD are often diagnosed at later stages of PD than their White counterparts and less likely to participate in medical research. CBPR emphasizes mutual trust and respect through shared ownership of the research product(s) between the community and research team. The PD Movers: We Keep Moving is a CBPR project centered on MBD with PD. It is a compilation of narratives accompanied by vibrant illustrations published in 2022 to share information, provide hope and inspiration, and raise awareness of PD.

Design/Methods

A mixed-methods approach was utilized where community members contributed to the development of interview guides. Individual interviews were conducted with PD Movers contributors (n=8) and with representatives from national PD advocacy organizations (n=6). Interviews were digitally recorded and transcribed*. Transcriptions were then analyzed using grounded theory. Concepts within the interviews were categorized using emergent themes and were verified by participants.

Geographic data was collected from physical copy (n=8181) order forms. Data was mapped using ArcGIS.

*Interview transcripts were generated with the artificial intelligence software Revoldive. Transcriptions were manually checked and corrected before analysis.

Results Community contributors and organizational representatives each emphasized the visibility and hopefulness of MBD within The PD Movers as a primary impact. Contributors also mentioned the cultural sensitivity of the research team as essential to the CBPR. Organizational representatives highlighted the need for similar projects to address the PD within other minoritized communities.

Geographic distribution data revealed clusters of orders within high population density areas. Further analysis is being done to map the order data with demographics on race and PD prevalence.

Conclusions CBPR can help create meaningful resources to increase visibility, awareness, and hope in historically underrepresented communities.

Authors/Disclosures
Sonia Chandra PRESENTER	Ms. Chandra has stock in Abbvie. Ms. Chandra has received research support from New York Academy of Medicine. Ms. Chandra has received personal compensation in the range of $10,000-$49,999 for serving as a Postbaccalaureate Fellow with National Institutes of Health.
Denise Coley (Enable Your Vision)	Denise Coley has received personal compensation in the range of $0-$499 for serving as a luncheon Speaker with Kyowa Kirin. Denise Coley has received personal compensation in the range of $0-$499 for serving as a Patient Advisory Panel with UCB. Denise Coley has received personal compensation in the range of $500-$4,999 for serving as a Patient Advisory Panel with Bayer.
Robert Coley	Robert Coley has received personal compensation in the range of $0-$499 for serving as a Luncheon Speaker with Kyowa Kirin. Robert Coley has received personal compensation in the range of $0-$499 for serving as a Patient Advisory Panel with UCB.
kermit smith	Mr. smith has nothing to disclose.
Sandra Coplin	Mrs. Coplin has nothing to disclose.
Angela Huckabee	Angela Huckabee has nothing to disclose.
Richard Huckabee	Richard Huckabee has nothing to disclose.
Terri Peacher-Ransom, Story Teller	Mrs. Peacher-Ransom has nothing to disclose.
Lorraine Haye, BBA	Mrs. Haye has nothing to disclose.
Alissa Pacheco, Occupational Therapist	Mrs. Pacheco has nothing to disclose.
Anita I. Parker, LMSW	Ms. Oarker has nothing to disclose.
Lori Quinn (Teachers College, Columbia University)	Lori Quinn has received publishing royalties from a publication relating to health care.
Parvathi Perumareddi, DO	Dr. Perumareddi has received personal compensation in the range of $0-$499 for serving as a speaker for CME conference with Oklahoma Osteopathic Association.
Hiral Shah, MD (Columbia University)	Dr. Shah has nothing to disclose.

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