Abstract Details

Title Analyzing Cultural Preferences to Improve Patient Satisfaction in Neuro-oncologic Care

Topic Neuro-oncology

Presentation(s) S28 - Neuro-oncology: Clinical and Practice Updates (4:54 PM-5:06 PM)

Poster/Presentation
Number 008

Objective We aim to assess glioblastoma patient and caregiver preferences across diverse racial groups.

Background Glioblastoma (GBM) patients require extensive care, placing a substantial burden on caregivers. Previous studies have found that caregiver burden was significantly higher for those caring for GBM patients compared to other cancers. Early caregiver burnout can lead to premature de-escalation of care, ultimately leading to poorer outcomes. Furthermore, patients and caregivers from diverse ethnic backgrounds often have varying preferences for clinical care which can impact the patient-provider relationship, psychological adjustment, and overall satisfaction with care.

Design/Methods We conducted a survey of GBM patients and their caregivers who received longitudinal treatment at our institution from 2021 to 2024 to assess preferences in outpatient neuro-oncologic care. Patients were interviewed by investigators and completed a validated questionnaire assessing preferences in the delivery of care.

Results Of 37 GBM patients who received care at our institution, 24 participated. Patients self-identified as Caucasians (46%), Hispanic (33%), or Other (21%) including African American (8%), Asian (5%), Polish (5%) and Ukrainian (3%). When disclosing terminal diagnosis, Caucasians and Other groups favored the patient autonomy model while Hispanics preferred the family centered model. Caucasians and Other ethnic groups preferred reviewing MRI images with the physician. All groups preferred direct contact with the treating team after working hours, which was associated with fewer ER visits. All preferred same day appointments for scans and physician consultation. Regarding end-of-life discussion, Caucasians preferred discussion at time of disease recurrence, while Hispanic and Other groups preferred to have this discussion early in the course of disease.

Conclusions

Our study identifies patient and caregiver preferences in neuro-oncologic care across different ethnic groups, offering insight into strategies for delivering high-quality, patient-centered care for individuals with brain tumors. These findings provide a framework for developing outpatient neuro-oncology policies that better meet the needs of diverse populations.

Authors/Disclosures
Jigisha Thakkar, MD (Loyola University Medical Center) PRESENTER	Dr. Thakkar has nothing to disclose.
Isabella Milejczyk, BS, MA	Miss Milejczyk has nothing to disclose.
Isaac Ng (Tufts University School of Medicine)	Mr. Ng has nothing to disclose.
Emily Schein, Student	Miss Schein has nothing to disclose.
Shariq M. Zaman	Mr. Zaman has nothing to disclose.
Andrew Pickles, Medical Student	Mr. Pickles has nothing to disclose.
Vikram Prabhu	Vikram Prabhu has received personal compensation in the range of $500-$4,999 for serving as a Consultant for Zeiss.
Melinda Miculinich, RN	Mrs. Miculinich has nothing to disclose.
Derek A. Wainwright, PhD	Prof. Wainwright has nothing to disclose.
Kevin Barton, MD	Dr. Barton has nothing to disclose.

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