This qualitative study explores how Latino cultural values influence conversations about genetic risk in families impacted by HD.

 Huntington’s disease is a genetic neurodegenerative condition that presents communication challenges in families. Little is known about how Latino families communicate about HD and its genetic risk within their family.

Four interconnected themes emerged:(1) Gaps in Knowledge, (2) Silence, (3)Cultural Values, and (4) Acculturation. Limited access to HD-trained providers, language barriers and low health literacy widened knowledge gaps and hindered communication about genetic risk. In contrast, US born participants showed openness and acted as family educators. Additionally, access to genetic counseling, HD trained providers and HD resources helped decreased knowledge gaps.

Findings highlight the role of cultural and systemic factors in genetic risk communication within Latino families. Expanding culturally competent care and HD education is crucial to improve communication and decision-making.